Important: Please read the disclaimer carefully!
By signing up for openSNP you declare that you have understood the
possible risks and side-effects that can occur by making your genetical and
medical information available on this platform. In short:
You agree that all data you upload to openSNP will be freely available online (well, except your mail-address and password) under a Creative Commons Zero license. The data can be viewed and downloaded through this webpage, RSS-feeds, and, in the future, perhaps via an API or FTP. Although you can delete your data from openSNP, this does not guarantee that someone else has not already created a backup of the data (who may re-publish the data somewhere else).
Although you can upload your data using a pseudonym, there is no way to anonymously submit data. Statistically speaking, it is really unlikely that your medical and genetic information matches that of someone else. By uploading, you do not only disclose information about yourself but also about your next kinship (parents and siblings), who share half of a genome with you. Before uploading any genetical data, you should make sure that those people approve of you doing so. This is especially important if you have a monozygotic twin, who shares all of your genome!
Medical and genetic data can be used to discriminate against people. Due to medical or genetic information, an employer may not give you a job, an insurance company may request higher payments, and who knows what any evil™ government will do with your data? Although some countries have laws against genetic discrimination, these laws certainly will not cover all possible discrimination scenarios and could change in the future. Again: these are side effects and risks which also can apply to your kinship if you chose to upload this information.
Nearly every week there are new scientific publications that find new associations between certain traits (like diseases) with existing genetic information. Because of this, you should not publish your data just because it currently looks harmless and unsuspicious. It may be true that your genotyping data is of no great interest to your employer, your insurance company, or the government right now, but this can easily change (Remember: one of the reasons to upload your data here in the first place is to enable everyone to find such new associations).
Think of the hypothetical SNP rs666. One day after you upload your genotyping-data to this website, a new publication finds that your genotype at rs666 will give you, your siblings and your parents a fatal disease that will most certainly strike all of you. Due to this disease you (and you kin) may lose your jobs and your insurance. Chances for an association of this kind may be small, but by uploading the data you are nonetheless taking this risk!
Accounts which only serve advertising will be deleted. Accounts which are uploading faked data or data copied from other user accounts will be deleted. We reserve the right to delete accounts for other operational reasons.
openSNP is a community-driven and community-owned project that is run by individuals and is not attached to any institution. Learn more about this on our About Us page.
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